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Sickle cell and thalassaeamia service

 

The Sickle Cell and Thalassaaemia service for Ealing is a service comprising of a specialist nurse for haemoglobinopathies who works with children and young people in the community to ensure they can achieve the optimum health in order to prevent complications and reduce hospital admissions.

The service provides:

  • Guidance and support for parents’ carers through the process of diagnosis, planning care and liaising with other health professionals within and outside Ealing NHS Trust

  • Home visits to offer support, encouragement and empowerment

  • Ensure all newly diagnosed babies are referred to the haemoglobinopathy Paediatrician Clinic as soon as possible and work in conjunction with the appropriate Paediatrician within the department

  • Health promotion advice to parents or carers whose children have identified haemoglobinopathy conditions

  • Health care plans for children in nursery or school diagnosed with health needs that may impact on their well-being

  • Attends health reviews with the paediatric consultant

  • Liaise with the Specialist Midwife and ante natal department within the community

  • Liaise with health visitors, school nurses, paediatric/maternity liaison health visitor, looked after children’s nurse and GPs in identifying children and adolescents who are admitted to hospital with crisis

  • Assists in the transition from paediatric care to adult care

  • Provides training sessions for various agencies, schools and colleges, families and establishments to inform and educate attendees of children in their care

  • Sign posting patients regarding benefits they maybe entitled to

  • Organises community events in collaboration with voluntary agencies to raise awareness of the disorders 

Outpatient clinics

Our outpatient clinics are located at Ealing Hospital.

  • Children’s clinics are held every 2nd and 4th Thursday afternoon
  • Adolescents are seen on Thursday mornings in the haematology clinic, main outpatients

To book, change or cancel a clinic appointment, contact Patient Services, 020 8967 5329.

Emergency care, inpatients and day cases

The emergency, inpatient and day care sickle cell and thalassaemia children’s services are located at Ealing Hospital. If your child is ill, take your child to the Accident and Emergency (A&E) at Ealing Hospital. If your child needs to say they will be admitted to the paediatric inpatient ward called 10 North Ward. All routine blood transfusions are carried out in 10 South Ward.

If you want advice or if your child is ill call Brigid Offley-Shore, Childrens Specialist Community Nursing Service (CSCNS) Duty Desk on 020 8825 8241 during normal working hours 9am-5pm, Monday-Friday excluding Bank Holidays.

For further information about Outpatient Clinics, Emergency Care, Inpatients and Day Cases please visit the main hospital sickle cell and thalassaemia pages.


Referrals

Referrals to the service can be made either by health professionals or by self referral either by phone or letter, however all patients must be registered with an Ealing GP.

To refer a patient, or to self-refer, please contact:

Brigid Offley-Shore, Community Nurse Specialist for Haemoglobinopathies, 0-18 years
Tel: 020 825 8241
Email: brigid.offley-shore@nhs.net

Contact

Based out of Carmelita House. Open from Monday to Friday 9 am - 5pm (excluding Bank Holidays)

Tel: 020 825 8241
Fax: 020 8825 8755
Email: brigid.offley-shore@nhs.net

Paediatric A/E Department, Ealing Hospital - Map and directions.
Tel: 020 8967 3708


Meet the team

Brigid Offley-Shore, Community Nurse Specialist for Haemoglobinopathies, 0-18 years

Dr Colin Michie, Consultant Paediatrician (Ealing Hospital)

Dr Mamta Sohal, Consultant Haematologist (Ealing Hospital)

Carole Dinsley, Paediatric Matron (Ealing Hospital)

Varsha Shah, Paediatric Sister (Ealing Hospital)

Charlie Adjetey, Specialist Midwife for High Risk (Ealing Hospital)

Nerinder Kaur, Haematology Day Unit (Ealing Hospital)

Joanna Piplak, Sister (Ealing Hospital)