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Sickle cell and thalassaemia 


Service contact
: Dr Lola Oni OBE: Lola.oni@nhs.net


The Brent Sickle Cell and Thalassaemia Centre (BSCTC) provide care for people with sickle cell and thalassaemia both in the hospital and community. All services are available for Brent residents from birth to throughout adulthood. Services are provided for Harrow residents from aged 0-16 years. There is no adult community service for Harrow clients. The team is made up of specialist nurses, a psychologist based at Central Middlesex hospital and the Brent Sickle Cell and Thalassaemia Centre and a social worker based at Hammersmith hospital.

We provide the following services:

  • Adult acute and community support services

  • Paediatric acute and community support services

  • Antenatal screening and follow up

  • Neonatal screening and follow up

  • Genetic testing

  • Psychology services

  • Social worker for our patients

  • Patient support group

  • The North West London Haemoglobinopathy Managed Clinical Network (MCN)

  • National Haemoglobinopathy Register 

  • Education, training and research 

  • Publications, DVDS and other multimedia resources

  • Dedicated website for information and education of professionals and the general public

Services provided to patients, professionals and the general public include:

  • Blood tests to identify if someone has sickle cell, thalassaemia or G6PD 

  • Counselling of pregnant women and their partners in order to identify a couple who are at risk of having a child with any of these genetic conditions and offering them an opportunity to make an informed choice about the pregnancy

  • Visiting newly diagnosed new born babies to inform and educate their parents

  • Counselling and support of patients and their families either at the centre or when necessary by visiting patients at home

  • Visiting patients when they are in hospital

  • Offering education and advice in schools, colleges, universities, religious establishments, community groups etc.

  • Psychology services, plesae see see sickle psychology website and BSCTC website for more information.

  • Social worker support for our local patients

Raising public awareness and education

An important role of the BSCTC is to raise public awareness through community publicity campaigns, education in schools, colleges, universities and educating, teaching and advising health and allied professionals in the proper care and management of people with these conditions. In addition the BSCTC provides health promotion leaflets, books, DVDs, dedicated website and other multimedia resources for the general public, patients and professionals. Please contact us on Tel: 020 8453 2050/2052 for any of these services. 

BSCTC website

Whether you are a patient, health professional or member of the public you will find up-to-date useful information about these conditions, help and advice at www.sickle-thal.nwlh.nhs.uk.


Hospital services summary

Outpatient clinics: All adult and children outpatient clinics are located at Central Middlesex hospital. 

Children:
The Accident and Emergency department, inpatient and day care sickle cell and thalassaemia children's services are located at Northwick Park hospital. Please do not take your child to Central Middlesex hospital for emergency sickle cell or thalassaemia care.

Adults: 
Adults with sickle cell and thalassaemia who are ill should not attend the Urgent Care Centre at Central Middlesex hospital. You will be directed to the Accident and Emergency at Northwick Park hospital.

Accident and Emergency care is provided at Northwick Park hospital, which is open 24 hours a day, seven days a week. Sickle cell and thalassemia patients can go to Northwick Park hospital Accident and Emergency for emergency care directly.

Day care unit, Haematology department, second floor, Central Middlesex hospital provides day care services for adult sickle cell and thalassaemia patients.

For further information about outpatient clinics, emergency care, inpatients and day cases please click here.

Where to find us 


Brent Sickle Cell and Thalassaemia Centre (BSCTC)
Central Middlesex Hospital, Acton Lane, Park Road, London NW10 7NS

Located at the back of the hospital. Open Monday to Friday between 9am to 5pm, closed bank holidays. 

Service lead for community adult and paediatric services, antenatal and newborn screening:  Dr Lola Oni OBE,Tel: 020 8453 2050/2052.

Service lead for psychology clinical and research services:  Dr Kofi Anie, Tel: 020 8453 2050/2052.
To make an appointment with the psychologist contact the outpatient clinic clerk, Haematology department on 020 8453 2292, Monday to Friday between 9am - 5pm.

Dr Gavin Cho, Consultant Haematologist, Clinical Lead and Medical Director BSCTC
Contact: Secretary, Central Middlesex Hospital Tel: 020 8453 2112, 9am - 5pm 

Dr Michele Afif
, Consultant Paediatrician, currently on sabbatical leave until June 2016
Dr Sheana Wijemanne, is covering
Contact: Secretary, Central Middlesex Hospital Tel: 020 8453 2121/2311, 9am - 5pm
              Secretary, Northwick Park Hospital Tel: 020 8869 2644  

Dr Lola Oni
OBE, Specialist Nurse Consultant & Service Director
Contact: Reception, Brent Sickle Cell & Thalassaemia Centre Tel: 020 8453 2050/2052, 9am - 5pm

Dr Kofi Anie, Clinical Psychologist
Contact: Reception, Brent Sickle Cell & Thalassaemia Centre Tel: 020 8453 2050/2052 or Outpatient secretary Tel: 020 8453 2292, 9am- 5pm

Florence Esara, Senior Haemoglobinopathy Specialist Nurse for Adults Acute Care Services, Central Middlesex Hospital, Tel: 020 8453 2169/ 2562

Jacquie Bowyer, Senior Haemoglobinopathy Specialist Nurse for Community Children Services, Brent Sickle Cell and& Thalassaemia Centre 020 8453 2054/2050/2052, 9am - 5pm

Specialist Nurse for Adult Community Care Services
Brent Sickle Cell and Thalassaemia Centre, Tel: 020 8453 2062/2050/2052, 9am - 5pm

Paula Sullivan, Specialist Midwife
Brent Sickle Cell and Thalassaemia Centre, Tel: 020 8453 2069/2050/2052, 9am - 5pm

Dr Annette Gilmore, Lead Nurse Researcher and IT project manager
Central Middlesex Hospital, Tel: 020 8453 2135 or Annette.gilmore@nhs.net, 9am - 5pm

Patricia Kiilu, Nurse Researcher
Central Middlesex Hospital, Tel: 020 8453 2593 (Tuesday and Wednesday) or Patricia.kiilu@nhs.net 

Zita Noone, Specialist Social Worker
Brent Sickle Cell and Thalassaemia Centre, Tel: 020 8453 2050/2052, 9am - 5pm 

Further information about sickle cell and thalassaemia conditions and help and advice about services can be found at:


Brent Sickle Cell and Thalassaemia Centre

Central Middlesex Hospital

Acton Lane

London NW10 7NS

Tel: 020 453 2050/2052

Fax: 020 8453 2051

Email: firstname.surname@nhs.net

Website: www.sickle-thal.nwlh.nhs.uk

 

Sickle Cell Society

54 Station Road

Harlesden

London NW10 7NS

Tel: 020 8961 7795

Fax: 020 8961 8346

Email: info@sicklecellsociety.org

Website: www.sicklecellsociety.org

 

United Kingdom Thalassaemia Society

19 The Broadway

Southgate Circus

London N14 6PH

Tel: 020 8882 0011

Fax: 020 8882 8618

Email: office@ukts.org

Website: www.ukts.org

 

NHS Sickle Cell and Thalassaemia Newborn Screening programme

Website: www.sct.screening.nhs.uk