.

Sickle cell and thalassaemia

Service contact

Acute care - Dr Gavin Cho gavin.cho@nhs.net
Community care - Dr Lola Oni lola.oni@nhs.net

The specialist sickle cell and thalassaemia service covers provision of care in the hospital and the community for people from birth and throughout adulthood. The team is made up of specialist nurses, doctors, psychologist and social worker, based in Central Middlesex and Northwick Park hospital and the community team is based at the Brent Sickle Cell and Thalassaemia Centre (BSCTC) currently based on the Central Middlesex hospital site.

We provide the following services:

  • Adult acute and community support services

  • Paediatric acute and community support services

  • Antenatal screening & follow up

  • Neonatal screening and follow up

  • Genetic testing

  • Psychology services

  • Social worker for our patients

  • Patient support group

  • The North West London Haemoglobinopathy Managed Clinical Network (MCN)

  • National Haemoglobinopathy register 

  • Education, training and research 

  • Publications, DVDs and other multimedia resources

  • Dedicated website for information and education of professionals and the general public



Outpatient clinics

All outpatient clinics are located at Central Middlesex hospital.

Children's clinic: every Tuesday afternoon (from 2pm to 5pm) in Paediatric outpatients (Rainbow Children’s Centre) ground floor.

Adult's clinic: every Tuesday morning (9am to 1pm) in Haematology department, second floor. 

Transcranial Doppler (TCD) ultrasound scanning clinic: held monthly on a Saturday, in the Haematology department, second floor. This clinic is for children from two years old upwards.

To book, change or cancel a paediatric or adult clinic appointment, contact the haematology clinic clerk on 020 8453 2292.

To change a TCD scan appointment contact the Radiology department on 020 8453 2275.



Emergency care, inpatients and day cases

Children

The accident and emergency, inpatient and day care sickle cell and thalassaemia children's services are located at Northwick Park hospital. Please do not take your child to Central Middlesex hospital for emergency sickle cell or thalassaemia care.

If your child is ill call the Paediatric Day Care Unit (PDCU) on 020 8869 3131/3437 during normal working hours, 9am to 5pm, Monday to Friday, closed bank holidays. You can take your child straight to PDCU during normal working hours, where specialist doctors and nurses will see your child. It is better to call and tell them you are coming so they can prepare for your child's arrival. When you call ask to speak to the nurse in charge and explain that your child has sickle cell or thalassaemia and is under the care of Dr Afif and Dr Cho.

Outside these hours take your child to the Accident and Emergency at Northwick Park hospital. If your child needs to stay in hospital they will be admitted to the paediatric inpatient ward called Jack's Place.

Adults

There are no emergency or inpatient services at Central Middlesex hospital. Sickle cell and thalassaemia patients should not attend the Urgent Care Centre at Central Middlesex hospital.

Accident and Emergency care provision at Northwick Park hospital: The Accident and Emergency department is open 24 hours a day, seven days a week. Sickle cell and thalassaemia patients can go to Northwick Park hospital Accident and Emergency department for emergency care. If you require admission you will be admitted to Carroll ward at Northwick Park hospital for ongoing care and treatment.

Medial Day Care unit located at Central Middlesex hospital: The adult Medical Day Care unit at Central Middlesex hospital offers procedures including blood transfusions, automated red blood cell exchange transfusions and care if you suffer from an acute, uncomplicated, sickle cell pain crisis. Patients with thalassaemia can attend for blood transfusion and other therapies. It is open during normal working hours 9am to 5pm, Monday to Friday and closed bank holidays.

Medical Day Care Sickle Cell Pain Crisis Service: Adults may self-refer to the day care unit for medical and nursing care between 9am and 4pm. To use this service you must call for telephone assessment with a nurse, on 020 8453 2562, and arrive by 11am. This will ensure sufficient time to manage your pain crisis. After 4pm if you are not well enough to go home arrangements will be made to admit you to hospital.

Inpatient Care: Adult patients will be admitted to Carroll ward at Northwick Park hospital.



Community care, psychology, antenatal and newborn screening

Some members of the specialist team are based in the Brent Sickle Cell and Thalassaemia Centre (BSCTC) at Central Middlesex hospital. They provide services for children and adult patients, professionals and the general public. They are open Monday to Friday between 9am to 5pm and closed bank holidays. Information about these service is located under ‘Community services’ under Harrow and Brent, please click on the links for further details. The service is managed by the Specialist Nurse Consultant, Dr Lola Oni, OBE.

For psychology clinical and research services contact Consultant Psychologist, Dr Kofi Anie at the Centre. To make an appointment with the Psychologist contact the Outpatient clinic clerk (Haematology Department) on 020 8453 2292 between Monday and Friday, 9am - 5pm, closed during bank holidays.

BSCTC website: Whether you are a patient, health professional or member of the general public you can find up-to-date information, help and advice at: www.sickle-thal.nwlh.nhs.uk.

Central Middlesex Hospital

Paediatric outpatient clinic: Rainbow Children’s centre - ground floor, main building. 

  • Outpatient clinic clerk, located in the Haematology department 
    Tel: 020 8453 229, Monday to Friday between 9am - 5pm

  • Rainbow outpatient clinic
    Tel: 020 8453 2065, during clinic on Tuesday afternoon only

Adult outpatient clinic: Haematology outpatient centre - second floor, main building.

  • Outpatient clinic clerk, Haematology department 
    Tel: 020 8453 2292, Monday to Friday between 9am - 5pm

Adult Medical Day Care (MDC) unit: Haematology Department, second floor, main building.

  • Open Monday to Friday between 9am -5pm, closed bank holidays.
    Day Care Unit Manager: Sister Jeanette Johnson, Tel: 020 8453 2562.



Northwick Park Hospital

Paediatrics

  • Paediatric Day Care Unit (PDCU): ground floor main building, located beside Jack's Place. Open Monday to Friday between 9am-5pm, closed bank holidays, Tel: 020 8869 3131 Ward Manager and 020 8869 3437 unit

  • Paediatric inpatient ward: Jack's Place, ground floor, main building, located next to the PDCU. Tel: 020 8869 2528/2529

  • Paediatric area in Accident and Emergency, Tel: 020 8869 5090

Adults

  • Carroll Ward, Tel: 020 8869 3886/3887 reception and 020 8869 3949/3950 nurses' station


 

Brent Sickle Cell and Thalassaemia Centre (BSCTC) located at the back of Central Middlesex hospital. Open Monday to Friday between 9am to 5pm, closed bank holidays, Tel: 020 8453 2050/2052.  

For psychology clinical and research services contact Consultant Psychologist, Dr Kofi Anie, Tel: 020 8453 2050/2052. To make an appointment with the Psychologists contact the Outpatient clinic clerk in Haematology department on 020 8453 2292 between Monday to Friday 9am - 5pm, closed bank holidays.

Meet the team   


Dr Gavin Cho
, Consultant Haematologist, Clinical Lead and Medical Director BSCTC
Contact: Secretary, Central Middlesex Hospital Tel: 020 8453 2112, 9am - 5pm 

Dr Michele Afif
, Consultant Paediatrician, currently on sabbatical leave until June 2016
Dr Sheana Wijemanne, is covering
Contact: Secretary, Central Middlesex Hospital Tel: 020 8453 2121/2311, 9am - 5pm
              Secretary, Northwick Park Hospital Tel: 020 8869 2644  

Dr Lola Oni
OBE, Specialist Nurse Consultant & Service Director
Contact: Reception, Brent Sickle Cell & Thalassaemia Centre Tel: 020 8453 2050/2052, 9am - 5pm

Dr Kofi Anie, Clinical Psychologist
Contact: Reception, Brent Sickle Cell & Thalassaemia Centre Tel: 020 8453 2050/2052 or Outpatient secretary Tel: 020 8453 2292, 9am- 5pm

Florence Esara, Senior Haemoglobinopathy Specialist Nurse for Adults Acute Care Services, Central Middlesex Hospital, Tel: 020 8453 2169/ 2562

Jacquie Bowyer, Senior Haemoglobinopathy Specialist Nurse for Community Children Services, Brent Sickle Cell and& Thalassaemia Centre 020 8453 2054/2050/2052, 9am - 5pm

Specialist Nurse for Adult Community Care Services
Brent Sickle Cell and Thalassaemia Centre, Tel: 020 8453 2062/2050/2052, 9am - 5pm

Paula Sullivan, Specialist Midwife
Brent Sickle Cell and Thalassaemia Centre, Tel: 020 8453 2069/2050/2052, 9am - 5pm

Dr Annette Gilmore, Lead Nurse Researcher and IT project manager
Central Middlesex Hospital, Tel: 020 8453 2135 or Annette.gilmore@nhs.net, 9am - 5pm

Patricia Kiilu, Nurse Researcher
Central Middlesex Hospital, Tel: 020 8453 2593 (Tuesday and Wednesday) or Patricia.kiilu@nhs.net 

Zita Noone, Specialist Social Worker
Brent Sickle Cell and Thalassaemia Centre, Tel: 020 8453 2050/2052, 9am - 5pm 

Further information about sickle cell and thalassaemia conditions and help and advice about services can be found at:


Brent Sickle Cell and Thalassaemia Centre

Central Middlesex Hospital

Acton Lane

London NW10 7NS

Tel: 020 453 2050/2052

Fax: 020 8453 2051

Email: firstname.surname@nhs.net

Website: www.sickle-thal.nwlh.nhs.uk

 

Sickle Cell Society

54 Station Road

Harlesden

London NW10 7NS

Tel: 020 8961 7795

Fax: 020 8961 8346

Email: info@sicklecellsociety.org

Website: www.sicklecellsociety.org

 

United Kingdom Thalassaemia Society

19 The Broadway

Southgate Circus

London N14 6PH

Tel: 020 8882 0011

Fax: 020 8882 8618

Email: office@ukts.org

Website: www.ukts.org

 

NHS Sickle Cell and Thalassaemia Newborn Screening Programme

Website: www.sct.screening.nhs.uk